More information is now available about Sync for Science (S4S), a pilot program from the National Institutes of Health (NIH) and Office of the National Coordinator for Health IT (ONC) that will allow individuals to access their own health data and send it to researchers.
Implementation of the program will be coordinated by NIH, ONC, and the Harvard Medical School department of biomedical informatics, and six electronic health record (EHR) developers have committed to participating: Allscripts, athenahealth, Cerner, drchrono, Epic, and McKesson.
Once the program has been fully developed and implemented, individuals taking part will connect a research application to their own health data, sharing personal preferences on data donation for future use.
According to the ONC’s blog, S4S has two primary goals: to develop methods to facilitate individual data donations to the Precision Medicine Initiative and to “guide the national ecosystem” for patients to access data through applications of their choice.
The ONC advises additional EHR vendors looking to take part in the program to join Argonaut’s open implementation program.